by admin | Sep 3, 2018 | Community
Rudy Menon Foundation The Rudy A Menon Foundation has been set up to help fund research on Gliomatosis Cerebri and other rare brain cancers. We are working with The Institute of Cancer Research (ICR), London, UK, where Dr. Chris Jones and his team are doing...
by admin | Aug 24, 2018 | Brain Tumor Organizations
The following are links to various brain tumor organizations: Children’s Brain Tumor Project Family Support National Brain Tumor Society The Cure Starts Now Pediatric Brain Tumor Foundation Pediatric Brain Tumor Foundation – Cure Memorial Sloan Kettering...
by admin | Aug 22, 2018 | Weill Cornell
The Children’s Brain Tumor ProjectThe Children’s Brain Tumor Project is a research effort at the Weill Cornell Pediatric Brain and Spine Center, co-directed by Dr. Mark Souweidane and Dr. Jeffrey Greenfield.The Children’s Brain Tumor Project has a single goal: to...
by admin | Aug 15, 2018 | Stories
Sean Jucha Sean Jucha was your typical 10-year-old boy until August 2013 when he was diagnosed with Gliomatosis Cerebri. Sean was admitted to the hospital for uncontrollable seizures out of the blue one late summer day. It took several weeks, multiple tests, and...
by admin | Aug 13, 2018 | Stories
TJ’s Story “I’m thankful for all the nice people I’ve met since I got sick.” Those were the words spoken by our son, TJ Reilly, at his last Thanksgiving in 2015. Despite his diagnosis of gliomatosis cerebri, he never stopped loving people & believing in the...