ENROLL IN THE REGISTRY


The Gliomatosis Cerebri Registry is a central repository of demographic and other data about cases of GC. Wherever possible, we will collect tissue samples from those in the registry to enrich our study and help us make progress against GC. We are open to sharing those samples with our partner institutions in the spirit of collaboration that drives us to find answers more quickly.

In addition, we sequence the genome of all Gliomatosis Cerebri patient tumors that we biopsy here at NewYork-Presbyterian/Weill Cornell Medical Center. Our patients may enroll in the Registry to provide information and samples that doctors obtain during the diagnosis and medical care of patients. There is no cost to patients, and there are no tests, scans or other medical procedures involved.

To find out more about enrolling in the Registry, visit the Who Is Eligible? page. To enroll, start by filling out the Gliomatosis Cerebri Registry form.

ENROLL IN THE REGISTRY

The GC Registry aggregates data and tissue samples from patients around the world. Intensive study of these samples and data will help unlock the mysteries of this terrible tumor.

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COMMUNITY

Join the advocacy and become part of the community that was established to support groundbreaking research in finding a cure for Gliomatosis Cerebri. Partners are either family touched by Gliomatosis Cerebri or foundations supporting the same cause. Click below to learn how to join the community.

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