The First Gliomatosis Cerebri Conference

The Conference was organized and supported by several GC foundations from Europe and North America on March 26–27, 2015, Paris, France. It gathered researchers and expert physicians from centers dedicated to pediatric and adult neuro-oncology.

Discussions included clinical, radiologic and morphologic diagnostic
criteria (with emphasis to diagnostic procedures and tissue manipulation), pediatric therapeutic recommendations, and relevant collaborative preclinical projects in order to set the background for future translational and clinical research projects

Gliomatosis Cerebri (GC) is a universally fatal extensive and diffuse infiltration of brain parenchyma by a glial tumor. Many aspects of this phenomenon remain unknown. To address this lack of information, the First International Gliomatosis Cerebri Group Meeting worked with the following goals:

1. Refine the clinical and radiologic diagnostic criteria for GC

2. Suggest appropriate diagnostic procedures

3. Standardize tissue manipulation for histologic and molecular characterization

4. Prioritize relevant preclinical projects.

Also, general treatment recommendations were outlined for the pediatric population. Importantly, this meeting was the starting point for meaningful collaborative international research projects.

Read the consensus summary of discussions shared and conclusions derived from this meeting.




The GC Registry aggregates data and tissue samples from patients around the world. Intensive study of these samples and data will help unlock the mysteries of this terrible tumor.


Join the advocacy and become part of the community that was established to support groundbreaking research in finding a cure for Gliomatosis Cerebri. Partners are either family touched by Gliomatosis Cerebri or foundations supporting the same cause. Click below to learn how to join the community.


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