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Welcome to the GC Website Resource Page. We have curated listings and communities we are sure can help you with your concerns about Gliomatosis Cerebr.

We are enthusiastic about creating this site as a platform for families and GC-related institutions to interact and share information. If you are fighting GC, we don’t want you to be alone. Connect with us!

To help you better understand Gliomatosis Cerebri, we provide some background information as well as a list of institutions and hospitals actively working with Gliomatosis Cerebri.

FAMILY RESOURCES

Join us on Facebook

The GC Connection is a network of people who have been touched by GliomatosisCerebri. It is a closed Facebook Group where we come together to share information on ourselves and our family members, including updates, struggles, treatment options, research and fundraising initiatives.
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Weill Cornell Pediatric Neuro & Spine Center

The Weill Cornell Pediatric Brain and Spine Center, directed by Dr. Mark M. Souweidane is a place to go to for individuals suffering from brain tumors among other sicknesses. The center takes a multidisciplinary approach for each child undergoing treatment, that is they take into account not only the disease at its current state but also the lifetime implications.
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FACTS ABOUT GLIOMATOSIS CEREBRI

Registry

The Gliomatosis Cerebri Registry is a central repository of demographic and other data about cases of GC. Wherever possible, we will collect tissue samples from those in the registry to enrich our study and help us make progress against GC.
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What is Gliomatosis Cerebri

Gliomatosis Cerebri is a rare brain cancer that is highly aggressive and very resistant to treatment. These malignancies are not lumps like other tumors, but cancerous threads that spread very quickly and infiltrate deep into the surrounding brain tissue, or into multiple parts of the brain simultaneously, making them very difficult to remove with surgery or treat with radiation. Gliomatosis Cerebri is extremely rare, with fewer than 100 cases diagnosed in the United States each year. It affects males and females equally.
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BRAIN TUMOR ORGANIZATIONS

Brain Tumor Organizations

The following are links to various brain tumor organizations: Children’s Brain Tumor Project Family Support National Brain Tumor Society The Cure Starts Now Pediatric Brain Tumor Foundation Pediatric Brain Tumor Foundation - Cure Memorial Sloan Kettering Pediatric...

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HOSPITALS & RESEARCH CENTERS – USA

HOSPITALS & RESEARCH CENTERS – USA

HOSPITALS & RESEARCH CENTERS HOSPITALS & RESEARCH CENTERS – USA Seeking for help from the right people with the appropriate facilities is one of the most important thing to decide on for families who were touched by Gliomatosis Cerebri. Thanks to NCHI...

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HOSPITALS & RESEARCH CENTERS – UK and EUROPE

Reference Physicians

HOSPITALS & RESEARCH CENTERS One of the pains of families who were touched by Gliomatosis Cerebri is not knowing the right people to contact for consultations. With that in mind, we referenced below 27 physicians representing each of the different countries in...

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ENROLL IN THE REGISTRY

The GC Registry aggregates data and tissue samples from patients around the world. Intensive study of these samples and data will help unlock the mysteries of this terrible tumor.

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COMMUNITY

Join the advocacy and become part of the community that was established to support groundbreaking research in finding a cure for Gliomatosis Cerebri. Partners are either family touched by Gliomatosis Cerebri or foundations supporting the same cause. Click below to learn how to join the community.

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