leads us forward.
leads us forward.
leads us forward.
leads us forward.
OUR STORY
GC Global was not built from plans -it was built from pain. In March 2015, inside the walls of the Marie Curie Cancer Institute in Paris, families devastated by Gliomatosis Cerebri, along with passionate medical experts and researchers, came together for the first time. What began as a conference transformed into a movement -ignited by shared grief, unwavering hope, and an urgent need for answers.
The Birth of GC Global
Paris marked a defining moment in the history of the GC community.
It was during this meeting that the vision for GC Global was born. Families, researchers, physicians, and foundation leaders recognized the need for a unified international organization dedicated to accelerating research, fostering collaboration, and supporting families worldwide.
The relationships and commitments formed during those two days continue to inspire the work of GC Global today, driving international research efforts, strengthening family engagement, and creating hope for those affected by Gliomatosis Cerebri.
OUR MISSION
We raise awareness and fund vital research to fight Gliomatosis Cerebri. Through global collaboration, GC Global shines a light on this rare disease and accelerates progress toward effective treatments and a cure.
OUR OBJECTIVES
Build a global platform to share resources and raise awareness for Gliomatosis Cerebri.
Organize and fund the bi-yearly GC Conference to connect experts and accelerate research.
Support studies to discover effective treatments and pursue a cure.
Foster connection and support among families affected by GC.
A Timeline of Impact
Powered by Love
Family foundations at the heart
The GC Global Conferences are funded by family foundations - created by families who faced the unimaginable and chose to transform grief into action. Their generosity sustains this movement. Their stories guide the science. Their children’s legacies live on in every breakthrough.
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THEIR LIGHT LIVES ON
GC Angels and Their Stories
Elizabeth’s Story
In 2010, Elizabeth Minter was diagnosed with gliomatosis cerebri. Before it took her life, Elizabeth and her family worked with neurosurgeon and researcher Dr. Jeffrey Greenfield to launch Elizabeth’s Hope. In June 2011, Elizabeth shared her story in her own words.
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Joshua’s Story
Joshua Nicolas Bembo was our sunshine, our curious, gentle, joyful little boy. On Thanksgiving Day 2011, he began having seizures. We rushed to the Emergency Room, hoping for answers, fearing the worst. And then, the words no parent should ever hear: gliomatosis cerebri.
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Izas’ Story
Izas was always a free soul. Her vision as a girl touched our heart, she made us understand that our walls were more beautiful when she drew on them. Happiness was spending every split second with her sister, happiness was feeling her touch in every hug, her lips in every kiss.
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RESEARCH
Raising Gliomatosis Cerebri Awareness Through Research
Support research to identify effective treatment options and find a cure for Gliomatosis Cerebri is one of the main objectives of the GC Global Community.
Weill Cornell Brain and Spine Center
Weill Cornell Medicine is a research partner for the GC Global Community.
Dana-Farber Boston Children’s Cancer and Blood Disorders Center
Our patients receive multidisciplinary care from neuro-oncologists, neurosurgeons, neurologists, and pediatric subspecialists.
SJD Barcelona Hospital
The SJD Barcelona Children’s Hospital’s Oncology and Hematology Department earned the reputation of being the national reference center to treat developmental cancer or commonly known as childhood cancer in Barcelona because of its research and treatment efforts.
Institute of Cancer Research
ICR London, is one of the world’s most influential cancer research institutes. They are passionate about their mission to make the discoveries that defeat cancer.
OUR COMMUNITY
From Isolation to Connection
When many of us began this journey, we were met with silence – never having heard of Gliomatosis Cerebri, we searched desperately online for answers, for hope, and for others walking a similar path.
What we found was a void: no active research, no dedicated support network, and no shared stories to guide us forward.
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Elizabeth’s Hope
Elizabeth’s Hope was established as a way of Elizabeth’s family to bring meaning to Elizabeth Minter’s diagnosis. It’s funding is focused to support research on rare tumors like Gliomatosis Cerebri. Here at Elizabeth’s Hope, we are deeply appreciative of our supporters, and we want to keep all of you updated.
The Joshua Bembo Project
The Joshua Bembo Project, Inc. is a non-profit organization created in memory of Joshua Bembo who lost his 15 month battle with Gliomatosis Cerebri on March 01, 2013. They are dedicated to providing hope to children diagnosed with rare and inoperable brain tumor such as the one that took Joshua’s life.
Izas’ La Princesa Guisante
The association Izas, la princesa guisante (Izas, Princess Pea), has the solid objective of promoting research, encouraging tissue donation to forward this research, and raising awareness amongst the medical community, families, and society about this fatal children’s cancer.
Franck Un Rayon de Soleil
Created in 2010 by the family and friends of the young Franck, 14, died of a brain gliomatosis, the association is involved in favor of cancer research in children but also in supporting families affected by this disease. Our commitment is to donate 100% of donations collected to research,
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