OUR STORIES

Gliomatosis Cerebri Stories

Have you or someone you loved been touched by Gliomatosis Cerebri? Share your story or video with us.

It matters when real-life stories are shared. The inspiration creates impact and sometimes change the minds and attitude of people around. We love to have stories of struggles for survival against Gliomatosis Cerebri and stories that show how love kept families stronger together amidst grief brought by this mysterious disease.

If you think you have this story or you know someone who does, we would love to hear from you. You would be amazed at how your story will inspire countless lives. It’s stories like yours that provide comfort and courage to others whose lives have been touched by Gliomatosis Cerebri.

Share your story by sending to thejoshuabemboproject@gmail.com

Elizabeth’s Story

In 2010, college sophomore Elizabeth Minter was diagnosed with gliomatosis cerebri. Before it took her life, Elizabeth and her family worked with neurosurgeon and researcher Dr. Jeffrey Greenfield to launch Elizabeth's Hope. In June 2011, Elizabeth shared her story in her own words.

Joshua’s Story

Joshua Nicolas Bembo is our little boy from Waldorf, Maryland. On Thanksgiving Day 2011, he had repeated bouts of seizures. An Emergency Room visit resulted in his first-ever MRI followed by a brain biopsy. The result became every parent's worst nightmare: he was diagnosed with gliomatosis cerebri,

Izas’ Story

Izas was always a free soul. Her vision as a girl touched our heart, she made us understand that our walls were more beautiful when she drew on them. Happiness was spending every split second with her sister, happiness was feeling her touch in every hug, her lips in every kiss. Smile never left her face.

Franck’s Story

During the summer of 2009, many migraine episodes follow one another. I do not care, it must be the heat, sunstroke. Mid-September, my mother insists on making me an MRI. Indeed, there are “white spots” in my brain. My mother is worried, but I tell her “I must be too smart”

Anna’s Story

Anna Yan Ji Arabia of North Adams, MA, USA who was diagnosed with Gliomatosis Cerebri at age 13, was treated for over three years at Dana-Farber Cancer Institute and became our angel at age 16 on Valentine’s Day 2013. We are continuing her love of helping others her name.

Rudy’s Story

On January 2013, after spending a wonderful Christmas with his parents and his brother, Rudy returned to his home in Nottingham, England. He was looking forward to getting back to his friends and his work but most importantly his gym and his training.

Anne’s Story

Anne Talau When we cannot add days to our life, we add life to our days. The “Anne un rayon de soleil” foundation was born from the story of a young girl from the South of France. Anne Talau, 8 years old, struck by Gliomatosis Cerebri in the spring of 2011.

Mathys’ Story

On August 31, I am hospitalized, because my state of health is deteriorating. I keep smiling until the end. Dad, mom, my sister, and my brother are very brave. I give them the courage to fight for a future without me. I fall asleep on October 9, 2015, after 9 months of fighting.

Patrick’s Story

Patrick was diagnosed with Astrocytoma grade III – Gliomatosis Cerebri. The struggle and painful journey started for all of us that day. The morning of the 24th of December 2013, Patrick’s left eye started blinking; he felt tired and didn’t want to play games.

Sean’s Story

Sean Jucha Sean Jucha was your typical 10-year-old boy until August 2013 when he was diagnosed with Gliomatosis Cerebri. Sean was admitted to the hospital for uncontrollable seizures out of the blue one late summer day. It took several weeks, multiple tests, and a brain biopsy.

TJ’s Story

“I’m thankful for all the nice people I’ve met since I got sick.” Those were the words spoken by our son, TJ Reilly, at his last Thanksgiving in 2015. Despite his diagnosis of gliomatosis cerebri, he never stopped loving people & believing in the goodness of other.

Allie’s Story

Allison “Allie” Michelle Fisher was born on October 16th, 2009. She was welcomed into this world by me, her dad, and her sister, Evie. Our family was complete, and we wished for nothing more. We were blessed with a baby that was pure joy from day one.

Thomas’ Story

Thomas was also anything but typical. He seemed to care more for others than for himself. He was that kind of kid who stood up to the bully on someone Else's behalf. So, who would have thought that such a soft-hearted beautiful being is suffering from something rare and deadly.

Hannah’s Story

On the night Hannah died, I said these words, "live with no regrets, love with compassion, be kind, and never ever give up that fighting spirit..." If you live those simple words, you will honor our beautiful Hannah because that is how she lived her life.

Daryn’s Story

Daryn Clark of Homer, Louisiana, was 50 years old when he was diagnosed with gliomatosis cerebri – one of the few adults to develop this rare brain tumor, which is more common among children, adolescents and young adults. His story is told here by his daughter Kathleen Clark

Ali’s Story

Ali hallal, he is my oldest son. At the age of 24 in May of 2014, he started vomiting and have lost about 33 lb within a month. We started to visit doctors and hospitals but they couldn’t figure out his illness. Early on, I suspected it to be cancer and told doctors but they decided for endoscopy.

Candice’s Story

The Path of Hope became dear to Candice's heart during her battle as a way to actively raise awareness about brain cancer/brain tumors. She observed many brain tumors cases yet very little research funding toward treatment. Yet, she still felt so lucky. Read to know why.

Alexandre’s Story

Alexandre peacefully left this earth but had left behind a huge legacy of love, courage, and hope. My son and his story in Strasbourg where we live touched many people. And his memory will always live with us for the rest of our lives. We will love him forever.