Weill Cornell – Brain and Spine Center
Weill Cornell Medicine is a research partner for the Gliomatosiscerebri.org. They are an active participant of the GC-Conference. They are committed to excellence in patient care, scientific discovery and the education of future physicians in New York City and around the world. Since 1898, their doctors and scientists have been engaged in world-class clinical care and cutting-edge research that connect patients to the latest treatment innovations and prevention strategies. Weill Cornell Medicine’s powerful network of collaborators extends to its parent university Cornell University; to Qatar, where Weill Cornell Medicine-Qatar offers a Cornell University medical degree; and to programs in Tanzania, Haiti, Brazil, Austria, and Turkey. Weill Cornell Medicine faculty provide comprehensive patient care at NewYork-Presbyterian/Weill Cornell Medical Center, NewYork-Presbyterian Lower Manhattan Hospital, NewYork-Presbyterian Queens and NewYork-Presbyterian Brooklyn Methodist Hospital. Weill Cornell Medicine is also affiliated with Houston Methodist.

Children’s Brain Tumor Project

The Children’s Brain Tumor Project is a research effort at the Weill Cornell Pediatric Brain and Spine Center, co-directed by Dr. Mark Souweidane and Dr. Jeffrey Greenfield. It has a single goal: to bring hope to the hundreds of patients and families each year who confront the heartbreaking diagnoses of rare and inoperable pediatric brain tumors.

Update from the Lab of Dr. Jeffrey Greenfield

Welcome to the gliomatosis cerebri (gc) “Letter from the Lab.” This is quarterly lab communication specific to progress being made in studying gliomatosis cerebri* at the Children’s Brain Tumor Project, Weill Cornell Medicine.

Dana Farber Cancer Institute

Children with Gliomatosis Cerebri are treated at Dana-Farber/Boston Children’s through their Glioma Program. It is one of the world’s largest treatment programs focused on childhood gliomas. Their brain tumor specialists have extensive expertise in treating all types of gliomas, including GBMs. Our patients receive multidisciplinary care from neuro-oncologists, neurosurgeons, neurologists, and pediatric subspecialists. Currently, Dana Farber is an active participant of the GC-Conference and are committed to research on finding the cure for this sickness.

Latest Update Dana Farber

Pediatric neuro-oncologist Mariella Filbin, MD Ph.D. leads the high-grade glioma research lab at Dana-Farber Cancer Institute. A current focus of this research is to use single-cell RNA-sequencing to sift through the many different cell types found within high-grade brain tumors including gliomatosis cerebri.

Institute of Cancer Research

Institute of Cancer Research

The Institute of Cancer Research (ICR), London, is one of the world’s most influential cancer research institutes. They are passionate about their mission to make the discoveries that defeat cancer. Through their unique partnership with The Royal Marsden and ‘bench-to-bedside’ approach, the ICR is able to create and deliver results in a way that other institutions cannot. Together, the two organizations are rated in the top four cancer centers globally.

SIOP Europe

The European Society for Paediatric Oncology Task Force

In the last few years, some scientific publications have highlighted the fact that Gliomatosis cerebri (GC) shares some relevant pathways other invasive high-grade gliomas have. This has been reproduced in small case series of adult and pediatric GC. Additionally, the 2016 WHO classification has deleted GC as a distinct entity, rather being considered as a growth pattern identified rarely in higher grade glial tumors.

ENROLL IN THE REGISTRY

The GC Registry aggregates data and tissue samples from patients around the world. Intensive study of these samples and data will help unlock the mysteries of this terrible tumor.

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COMMUNITY

Join the advocacy and become part of the community that was established to support groundbreaking research in finding a cure for Gliomatosis Cerebri. Partners are either family touched by Gliomatosis Cerebri or foundations supporting the same cause. Click below to learn how to join the community.

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