JOIN OUR FAMILY

An International Brain Tumor Community / Families United Worldwide for a Cure

PARTICIPATE IN THE SOLUTION

Registry

ENROLL IN THE REGISTRY

The GC Registry aggregates data and tissue samples from patients around the world. Intensive study of these samples and data will help unlock the mysteries of this terrible tumor.

SUPPORT OUR CAUSE

COMMUNITY

Join the advocacy and become part of the community that was established to support groundbreaking research in finding a cure for Gliomatosis Cerebri. Partners are either family touched by Gliomatosis Cerebri or foundations supporting the same cause. Click below to learn how to join the community.

READ MORE

When many of us started this journey, we were alone. Having never heard of GliomatosisCerebri, many of us reached out to the internet and social media to find information on where research was being done, and meet others on the same path. What we found was that information was very limited. There was no research being done and no community of GliomatosisCerebri families.  This has now changed, and in addition to having this website now available, there is a Facebook Group, “The GC Connection” and now an internationally connected community. The GC Connection is a network of people who have been touched by GliomatosisCerebri. It is a closed Facebook Group where we come together to share information on ourselves and our family members, including updates, struggles, treatment options, research and fundraising initiatives. The FB group was created by Stacey Gravina, a mother who lost her son to GC. With GliomatosisCerebri such a rare disease, it is through The GC Connection where we find others who have shared our most similar experiences. We are a diverse group of families, with members currently being treated as well as those who are honoring their angels. We have members from many different parts of the world, and provide support for each other in many different ways. If you or someone you know has been touched by GliomatosisCerebri, please share our information with them. The GC Connection wants to make a difference in any way possible… advocacy, support, fundraising, awareness.

Mouse over each pin to discover family, partners, or research centers.

AYJ Fund / Boston, MA, USA

Elizabeth’s Hope / New York, NY, USA

Elizabeth’s Hope
New York City, NY
Email: info@elizabethshope.com

The Joshua Bembo Project / Maryland, USA

The Joshua Bembo Project
Waldorf, MD
Email: thejoshuabemboproject@gmail.com

Rudy Menon Foundation / London, UK

Rudy Menon Foundation
London, UK
email: rememberingrudymenon@gmail.com

Izas La PrincesaGuisante / Barcelona, Spain

Franck Un Rayon de Soleil / France

Franck Un Rayon de Soleil
8 Rue des Orfèvres
67290 Wingen-sur-Moder, France
email: a.andlauer@alphavalue.ue

Rudy Menon Foundation / Kuwait

Rudy Menon Foundation
India
email: rememberingrudymenon@gmail.com

The Joshua Bembo Project / Philippines

The Joshua Bembo Project
Philippines
Email: thejoshuabemboproject@gmail.com

Mathys Un Rayon De Soleil / France

Mathys Un Rayon De Soleil
113 La Pécotaie
44390 Saffré, France

Anne Un Rayon De Soleil / France

Rudy Menon Foundation / India

Fe Y Misericordia / Peru

Franck Un Rayon de Soleil / France

Weill Cornell Brain & Spine Center / New York City, NY

Dr. Jeffrey Greenfield
Weill Cornell Brain & Spine Center
1300 York Avenue, New York, NY 10065
Phone: (212) 746-2363

Dana–Farber Cancer Institute / Boston, MA

Institute of Cancer Research / London, United Kingdom

Hospital Sant Joan de Déu Barcelona / Barcelona, Spain

National Children’s Medical Center / Washington DC

Dr. Roger Packer
National Childrens Medical Center
111 Michigan Avenue NW, Washington, D.C., 20010
Phone: 1-888-884-BEAR (2327)

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