RESEARCH UPDATES

Support research to identify effective treatment options and find a cure for Gliomatosis Cerebri is one of the main objectives of the GC Global Community. We also aim for collaboration with physicians and researchers to support international Gliomatosis Cerebri conferences to raise awareness and advance research. Read about updates on ongoing research and projects from partners we help fund or collaborate with.

The SJD Barcelona Children’s Hospital’s Oncology and Hematology Department

The SJD Barcelona Children’s Hospital’s Oncology and Hematology Department earned the reputation of being the national reference center to treat developmental cancer or commonly known as childhood cancer in Barcelona because of its research and treatment efforts. It is also an international reference center for determined types of tumors.

As a developmental center for cancer, they treat all kinds of cancers (oncology) and all uncommon hematological diseases (hematology).

As a research center, they practice translational research focusing on quick scientific advancement that aims to answer questions that their oncologists raise while treating children suffering from developmental cancer.

Click on the links below to know more about San Joan de Deu Barcelona Hospital to know more about research project and involvement with Gliomatosis Cerebri

SJD Treatment Process and Facilities

San Joan de Deu Hospital F Diagnostic Imaging

Image Source: SJD Hospital

SJD has been working to develop new therapies and treatments expected to be more effective but less aggressive. As one of Europe’s leading centers of pediatric research, they have eight lines of research and are also taking part in numerous clinical trials.

They also put great attention not only to the well-being of their patients but also to the families involved. Because of this, they see that their patients receive individual care or personalized medicine.

Facility wise, SJD pride on having access to all medical techniques for diagnosis and patient treatment. Not only that but also with facilities set to provide a pleasant environment for their patients regarding age and need.

Research Focus and Ongoing Projects

SJD Barcelona Research

Image Source: SJD Barcelona

Diffuse Intrinsic Pontine Glioma (DIPG), Gliomatosis Cerebri

SJD look into DIPG as one of their focus because this pediatric tumor has no curative treatment yet found and yet had claimed 90% of patients within two years after diagnosis. Fortunately, SJD launch the first clinical trial in the world with autologous dendritic cell vaccines.

For DIPG research, their main ongoing projects:

  • Pre-clinical immunotherapy projects.
  • Nanotechnology to cross the blood-brain barrier.
  • Assessment of treatments using pre-clinical pharmacology in animal models.
  • Clinical trial: immunotherapy with autologous dendritic cells pulsed with heterologous DIPG cell lines.

Neuroblastoma

Ewing’s sarcoma

Retinoblastoma

Leukemia

Histiocytosis

Rhabdomyosarcoma

Shared projects

  • Precision therapy
  • Assessment of new nanotechnology-based systems for administering medications in pediatric solid tumors.
  • Treatment of patients with refractory or relapsed tumors based on a pre-clinical pharmacological study in animal models.
  • Innovation in cancer surgery.

Registry

ENROLL IN THE REGISTRY

The GC Registry aggregates data and tissue samples from patients around the world. Intensive study of these samples and data will help unlock the mysteries of this terrible tumor.

COMMUNITY

Join the advocacy and become part of the community that was established to support groundbreaking research in finding a cure for Gliomatosis Cerebri. Partners are either family touched by Gliomatosis Cerebri or foundations supporting the same cause. Click below to learn how to join the community.

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PARTNER

Share4Rare is a European project which aims to improve the quality of life of those affected by a rare disease. Their vision is to improve patients' lives by promoting better science. Currently, they partner with several research institutions in the UK and now with the Gliomatosis Cerebri Conference to advance research and share knowledge.

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