When we cannot add days to our life, we add life to our days.
The “Anne un rayon de Soleil” foundation was born from the story of a young girl from the South of France. Anne Talau, 8 years old, struck by Gliomatosis Cerebri in the spring of 2011. Anne embodied softness with an artist soul. She liked playing music, painting and expressing herself through theater. A kind and compassionate child to all, she hated conflicts and was always peaceful. As an anecdote, she elaborated a friendship charter for her friends, to keep respect in the schoolyard. Sadly, Anne had to fight with courage from the age of 8, a terrible and rare brain cancer – Gliomatosis Cerebri. During her disease which lasted 12 months, a solidarity impulse created the Anne foundation to fulfill her last dreams.
Her great maturity allowed her to leave us some instructions for the foundation. She was always embarrassed by the generosity of people. She wanted this foundation to continue its actions for children with cancer to brighten their days, to help their families and to develop research. She had a big fondness for Madagascar and wanted us not to forget children who were not lucky enough to be cared for in France. The Anne foundation went to Madagascar a few months after her death, to Antananarivohospital, loaded with drugs, toys, and medical supplies. The foundation provided funding for research also.
Today, actions are still the heart of our motivation because GC remains a scourge. In the 21st century, it is unthinkable to let children die from a disease without being able to do anything. The Anne foundation has set three objectives.
The first one essentially consists of research on GC (and other rare pediatric brain diseases). This rare pathology should not paralyze us because it keeps on stealing our children and there is no hope of survival.
Through the SIOPE group in Europe, our actions found a positive echo among our donators. Studies evolved and we work to bring financial support to researchers. There are no big or small actions, they are all beneficial because they help us not to give up.
Beyond the researchers work, there are ill children and the second objective of the foundation is to support their relatives; smoothen their time in the hospital or in their homes thanks to adapted trips, improving comfort or equipment, talking, laughing and listening!
After the final sentence has been delivered, we are still there, because everything is not over, because the loss of a child in these conditions remains a big trauma. On the other side, they are here, they look after us and give us the courage to continue. This goodwill is comforting and allows us to organize different support conferences.
The third objective is to raise as many people’s awareness as possible about the current challenges medicine faces. The mobilization of the greatest number, the union of many forces will, one day, allow us to determine the limits of this cancer.
One word remains on our lips: THANKS!THANKS, is the only word my little Anne would say to all the people who helped her. A big THANKS on her lips with all the small force remaining her love!
Join the advocacy and become part of the community that was established to support groundbreaking research in finding a cure for Gliomatosis Cerebri. Partners are either family touched by Gliomatosis Cerebri or foundations supporting the same cause. Click below to learn how to join the community.