Rudy’s Story


On January 2013, after spending a wonderful Christmas with his parents and his brother, Rudy returned to his home in Nottingham, England. He was looking forward to getting back to his friends and his work but most importantly his gym and his training.

Life was good despite it being a ridiculously cold winter. Rudy settled back into his very disciplined routine of training at the gym and his work.

At the end of January, two weeks after he had returned to Nottingham, Rudy noticed he was missing a step on the step master at the gym and also that he was unable to lift the same weights with his right hand as he could with his left. Thinking that this was all due to the break he had taken from the gym during the Holiday period, he decided he needed to push himself harder.

By the first week of February, he started to feel a little drag in his right leg. After visits first to his GP and then the Neurologist, he was admitted to the Queen’s Medical Centre in Nottingham, where he went through extremely extensive neurological testing. All the tests came back negative. By now he had started physically slowing down a bit. But we all still had hope as none of the tests had come back positive.

Since we could not get any answers as to what was causing the deterioration in Rudy’s condition, we moved with him to the National Hospital of Neurology and Neurosurgery (NHNN) in London. This is a premier center for neurology and has a reputation of being amongst the best both within the country and in Europe as well.

After spending a month at the NHNN and undergoing further extensive testing, it was only after a biopsy was conducted that we were given the devastating news that Rudy had Gliomatosis Cerebri. A few days after this terrible diagnosis, Rudy slipped into unconsciousness, 18 weeks after he felt the first symptom at the end of January.

He left us nine days later, on the morning of June 4th, 2013, his 26th birthday

Visit The Rudy Menon’s Foundation.

ENROLL IN THE REGISTRY

The GC Registry aggregates data and tissue samples from patients around the world. Intensive study of these samples and data will help unlock the mysteries of this terrible tumor.

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COMMUNITY

Join the advocacy and become part of the community that was established to support groundbreaking research in finding a cure for Gliomatosis Cerebri. Partners are either family touched by Gliomatosis Cerebri or foundations supporting the same cause. Click below to learn how to join the community.

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