GLIOMATOSIS CEREBRI INTERNATIONAL CONFERENCE

Where Science Meets Love. Where Grief Becomes Action. Where Hope Refuses to Fade.

In the face of one of the rarest and most devastating brain tumors – Gliomatosis Cerebri (GC) – families and researchers from around the world have come together to build something extraordinary: a global movement born from heartbreak, sustained by courage, and driven by the relentless pursuit of answers.

These conferences are not just gatherings. They are lifelines. They are promises. They are proof that even in the darkest moments, love can lead the way.

Why These Conferences Matter

Gliomatosis Cerebri is aggressive, elusive, and often misdiagnosed. For families, it means navigating a medical wilderness with few maps and fewer treatments. For clinicians, it presents a research frontier that demands global coordination, innovation, and deep empathy.

The GC International Conferences were created in response to this urgent need—not just for scientific progress, but for human connection. A sanctuary for families. A catalyst for discovery. A tribute to every child who has faced this disease with unimaginable braver.

Dual Purpose, Singular Mission

For Families: A sacred space to share stories, grief, resilience, and hope. Parents meet others who understand their journey. They find comfort, solidarity, and a renewed sense of purpose.
For Researchers & Clinicians: A collaborative forum to exchange data, refine treatment strategies, and accelerate the search for a cure.

Together, these voices form a united front—refusing to let Gliomatosis Cerebri remain in the shadows

A Timeline of Impact

2025 – London, UK

The 5th GC Conference, hosted by the Institute of Cancer Research (ICR), continues this powerful legacy – uniting families, scientists, and foundations to accelerate discovery, share breakthroughs, and honor the children whose courage drives every step forward. This year, three competitive research grants – $100,000 each – were awarded to advance innovative studies on Gliomatosis Cerebri, marking one of the conference’s most significant investments in scientific progress to date.

2023 – New York City, USA

The fourth GC Conference, cohosted by the Children’s Brain Tumor Project at Weill Cornell Medical College, marked a return to the heart of research. This convening focused on accelerating tissue analysis, expanding genomic sequencing, and strengthening the bridge between families and scientists. Researchers presented updates on their progress, sharing early breakthroughs in mutation mapping and therapeutic exploration—offering families a glimpse of hope grounded in data, dedication, and love.

Family Foundation Representatives of GC Patients

2019 – Barcelona, cohosted Sant Joan de Déu Barcelona Hospital

The third GC Conference once again brought together families and international experts from across continents, reaffirming a global commitment to understanding and defeating GC. It was a powerful convergence of science and compassion – where lived experience met cutting-edge research, and hope was reignited. A research grant was awarded to a scientist pursuing a promising new avenue of investigation, marking a pivotal step forward in the collective fight for answers.

2015 1ST GC CONFERENCE INSTITUT CURIE | PARIS, FRANCE

The inaugural GC Conference was held at the Institute Curie, a premier French cancer center in Paris. It marked the first time families and researchers stood together to confront GC – a groundbreaking moment of unity, resolve, and shared vision. Five family foundations – Izas’ La Princesa Guisante (Spain), Elizabeth’s Hope – The Minter Family (USA), AYJ Fund (USA), The Joshua Bembo Project (USA), and Franck Un Rayon de Soleil (France) – together with the support of families affected by GC across the world, made this possible.

2017 – Maryland, USA

Co-sponsored by the National Institutes of Health (NIH), this second convening deepened scientific dialogue and expanded the family network. It honored the memory of children whose lives continue to guide the mission.

Powered by Love: Family Foundations at the Heart

These conferences are funded by family foundations—created by parents who’ve faced the unimaginable and chose to transform grief into action. Their generosity sustains this movement. Their stories guide the science. Their children’s legacies live on in every breakthrough.

- - Children’s Brain Tumor Project at Weill Cornell
  - Elizabeth’s Hope – The Minter Family
  - Franck Un Rayon de Soleil
  - The Joshua Bembo Project
  - Izas’ La Princesa Guisante
  - AYJ Fund
  - Nina Un Rayon de Soleil
  - Fe y Misericordia
  - Rudy Menon Foundation
  - Mathys Un Rayon de Soleil
  - Ty Louis Campbell Foundation

THE ROAD AHEAD

The GC Conferences are not just events, they are milestones in a movement. They reaffirm:

The long-term commitment needed to understand and treat GC
The power of shared experience in driving scientific urgency
The need for sustained funding from foundations, institutions, and individuals who believe in the possibility of a cure

A Legacy of Hope

Every conference is a tribute – honoring the children who fought and those still fighting, to families who refuse to give up, and to researchers who carry their stories into the lab. It’s where grief becomes fuel. Where science meets soul. Where hope is not just imagined, but built – together.

A Community That Refuses to Give Up

The GC International Conference is more than an event – it is a movement.
A promise to every child, every parent, every patient: You are not alone. We are listening. We are fighting. We will not stop.