The Children’s Brain Tumor Family Foundation
The Children’s Brain Tumor Family Foundation is built by families who have been united by tragedy. Frustrated by a lack of funding for research for inoperable brain tumors, these families have formed a foundation to support the research at the Children’s Brain Tumor Project at Weill Cornell.
The project, led by Dr. Mark Souweidane and Dr. Jeff Greenfield, gives hope to the children and families facing the heartbreaking diagnosis of inoperable pediatric brain tumors. Determined to make a difference in the fight against these killers, the Children’s Brain Tumor Family Foundation is committed to raising awareness and funds for the Children’s Brain Tumor Project.
The foundation was founded in 2015 and has been actively raising funds to support the Children’s Brain Tumor Project (CBTP) at Weill Cornell Brain and Spine Center.
Click to read more about the Children Brain Tumor Family Foundation
JOIN OUR GROUP
The GC Connection is a network of people who have been touched by Gliomatosis Cerebri. It is a closed Facebook Group where families come together to share information on ourselves and our family members, including updates, struggles, treatment options, research and fundraising initiatives.
Registry
ENROLL IN THE REGISTRY
The Gliomatosis Cerebri Registry is a key part of the Children's Brain Tumor Project at Weill Cornell Medicine Pediatric Neurosurgery. The registry will establish a central database of gliomatosis cerebri cases worldwide, aggregating data on medical history, diagnostics, genomics, treatments, and outcomes.
COMMUNITY
Join the advocacy and become part of the community that was established to support groundbreaking research in finding a cure for Gliomatosis Cerebri. Partners are either family touched by Gliomatosis Cerebri or foundations supporting the same cause. Click below to learn how to join the community.