Remembering Chase Balay

Remembering Chase Balay is a site dedicated in the memory of Chase Balay, another kid touched by Gliomatosis Cerebri. The site narrates the saga of a mother agonizing for his lost son. Julie Balay, Chase’s mother wrote,

“The scars remain but there are no open wounds and its dense green leaves show me it’s actually thriving. The way it now leans invites children to climb and explore its grandeur and smile. It’s imperfections are now its allure.

It will never be perfectly round again or stand up straight like its neighbors. But it’s alive. And its flaws are now what make it interesting and even inviting”.

It also gives the reader some vivid walk to the life of Chase.

“All children are special. I love talking to them and listening to their funny conversations and hearing their obscure yet pensive questions. They are each a gift and make this world a much much better place. Chase, like all children, was special. But he was also a different kind of special. I knew that from the start yet as his mother I always thought, “Everybody thinks their kid is special. I am just biased.” But over the years even when Chase was well, people who met him always had a “Chase story” for me and told me how special THEY thought he was.  More and more I knew it was not just my motherly bias at work…he was “that kid”. The kid people remembered. I share this account below from a teacher at Chase’s school who didn’t have Chase as her student.  A story I had never heard until after he died”.




The GC Registry aggregates data and tissue samples from patients around the world. Intensive study of these samples and data will help unlock the mysteries of this terrible tumor.


Join the advocacy and become part of the community that was established to support groundbreaking research in finding a cure for Gliomatosis Cerebri. Partners are either family touched by Gliomatosis Cerebri or foundations supporting the same cause. Click below to learn how to join the community.


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