HOSPITALS & RESEARCH CENTERS
One of the pains of families who were touched by Gliomatosis Cerebri is not knowing the right people to contact for consultations.
With that in mind, we referenced below 27 physicians representing each of the different countries in Europe.
If your child has been diagnosed, or your medical team has suspected GC, do not hesitate to contact the doctors on this list.
They are all brilliant minds, and they are working to find a cure and for children to have the best quality of life possible.
European Group Coordinator SIOPe for Gliomatosis Cerebri:
Andrés Morales e-mail: amorales@hsjdbcn.org
List of Hospitals and Research Centers that takes care of Gliomatosis Cerebri
| Country | National Coordinator HGG | Center/Organization | Contact |
| Austria | Martin Benesch | Medical University of Graz, Auenbruggerplatz, Austria | Martin.Benesch@klinikum-graz.at |
| Belgium | Sandra Jacobs | Universiteit van Amsterdam, Belgium | sandra2.jacobs@uzleuven.be |
| Croatia | Filip Jadrijevic-Cvrlje | Children’s Hospital Zagreb, Zagreb, Croatia | filipjc@yahoo.com |
| Czech Republic | David Sumerauer | Charles University in Prague, Prague (CUNI), Czech Republic | David.Sumerauer@fnmotol.cz |
| Denmark | Karsten Nysom | Copenhagen University Hospital, Denmark | Karsten.Nysom@regionh.dk |
| Finland | Virve Pentikäinen | Helsinki University Central Hospital, Helsinki (HUCH), Finland | virve.pentikainen@hus.fi |
| France | Jacques Grill | Institut de Cancérologie Gustave Roussy, Villejuif (IGR), France | grill@igr.fr |
| Germany | Christof Kramm | Universitätsmedizin Göttingen, Goettingen, Germany | christof.kramm@med.uni-goettingen.de |
| Greece | Antonis Kattamis | National & Kapodistrian University of Athens, Greece | ankatt@med.uoa.gr |
| Hungary | Peter Hauser | Semmelweis University, Budapest (SOTE), Hungary | hauserpeti@yahoo.com |
| Iceland | Hallress Kristin Thorarinsdottir | Iceland | halldkth@landspitali.is |
| Ireland | Jane Pears | The University of Dublin College Green Dublin 2, Ireland | Jane.Pears@olchc.ie |
| Italy | Maura Massimino | Fondazione IRCCS Istituto Nazionale dei Tumori In Milano, Italy | maura.massimino@istitutotumori.mi.it |
| Lithuanian | Giedre Rutkauskiene | Lithuanian University of Health Sciences, Kaunas LSMU | giedre.rutkauskiene@gmail.com |
| Malta | Calvagna, Victor | Mater Dei Hospital, Malta | victor.calvagna@gov.mt |
| Netherlands | Dannis van Vuurden | VU University Medical Center, Amsterdam, The Netherlands | dg.vanvuurden@vumc.nl |
| Norway | Ingrid Torsvik | Haukeland University Hospital, N-5021, Bergen, Norway | ingrid.kristin.torsvik@helse-bergen.no |
| Poland | Marta Perek-Polnik | National Science Centre, Poland | m.perek-polnik@czd.pl |
| Portugal | Maria João Gil-da-Costa | Hospital de São João, Porto (HSJ), North Region Portugal | mjgildacosta@gmail.com |
| Russia | Olga Zheludkova | Scientific Clinical Centre Pediatric Hematology, Oncology, Immunology at HR&rec, Moscow, Russian Federation | clelud@mail.ru |
| Slovakia | Ladislav Deak | Children Faculty Hospital, Slovakia Republic | deak@dfnkosice.sk |
| Slovenia | Lidija Kitanovski | Ljubljana University Medical Centre, Slovenia | lidija.kitanovski@kclj.si |
| Spain | Andres Morales | Barcelona Children’s Hospital, Spain | amorales@hsjdbcn.org |
| Sweden | Stefan Holm | Karolinska Institutet, Sweden | stefan.holm@karolinska.se |
| Switzerland | Nicolas Gerber | University Children’s Hospital, Zurich, Switzerland | nicolas.gerber@kispi.uzh.ch |
| Turkey | Rejin Kebudi | Istanbul University, Istanbul, Turkey | rejinkebudi@yahoo.com |
| UK | Darren Hargrave | The Brain Tumour Charity and Cancer Research UK | darren.hargrave@nhs.net |
RESEARCH UPDATES
RECENT ARTICLES
Latest Update Dana Farber
Pediatric neuro-oncologist Mariella Filbin, MD Ph.D. leads the high-grade glioma research lab at Dana-Farber Cancer Institute. A current focus of this research is to use single-cell RNA-sequencing to sift through the many different cell types found within high-grade brain tumors including gliomatosis cerebri.
read moreChildren’s Brain Tumor Project
The Children’s Brain Tumor Project is a research effort at the Weill Cornell Pediatric Brain and Spine Center, co-directed by Dr. Mark Souweidane and Dr. Jeffrey Greenfield. It has a single goal: to bring hope to the hundreds of patients and families each year who confront the heartbreaking diagnoses of rare and inoperable pediatric brain tumors.
read moreUpdate from the Lab of Dr. Jeffrey Greenfield
Welcome to the gliomatosis cerebri (gc) “Letter from the Lab.” This is quarterly lab communication specific to progress being made in studying gliomatosis cerebri* at the Children’s Brain Tumor Project, Weill Cornell Medicine.
read more