Thomas’ Story

Thomas’ Story Thomas was diagnosed with GliomatosisCerebri at the age of 9. It was a disease we knew nothing about nor have heard about. But then we were force to understand that such thing as GC exists and it is a very rare and inoperable brain tumor. This tumor is...

Hannah’s Story

Hannah’s Story Our beautiful Hannah Rose… Born on March 18th, 1999…from the minute Hannah was born, it seemed as though she had a job to do…curious from her first moments, she didn’t sleep much, always much too interested in what was going on around her. ...

Daryn’s Story

Daryn’s Story Daryn Clark of Homer, Louisiana, was 50 years old when he was diagnosed with gliomatosis cerebri – one of the few adults to develop this rare brain tumor, which is more common among children, adolescents and young adults. His story is told here by...

Ali’s Story

Ali’s Story Ali Hallal, he is my oldest son. At the age of 24 in May of 2014, he started vomiting and have lost about 33 lb within a month. We started to visit doctors and hospitals but they couldn’t figure out his illness. Early on, I suspected it to be cancer...

Candice’s Story

Candice’s Story So many brain tumors and very little etiology or even research funding toward treatment. So, when I ended up diagnosed with such a rare tumor, why did I feel so lucky? I only had to have a brain biopsy that I healed from very quickly. Because my...

Alexandre’s Story

Alexandre’s Story  On March 17th, 2009 we had the unbelievable joy to welcome in our family our baby twins Alexandre Luca and Sophie Michelle.  Probably it was the happiest we’ve ever been in life. Alexandre walked at 9 months and since the beginning, he had...