Hannah’s Story


Our beautiful Hannah Rose…

Born on March 18th, 1999…from the minute Hannah was born, it seemed as though she had a job to do…curious from her first moments, she didn’t sleep much, always much too interested in what was going on around her.  Her curiosity and zest for life from a very young age was incredible.  She was a crazy kid…loved getting dirty, always outside riding her bike & skateboard, climbing trees, and building forts…a tomboy for sure!  And as she grew from a young child to a beautiful teenager, that spirit never left her.

Hannah was an incredible young woman…she was funny, wicked smart, a gifted athlete, a fiercely loyal friend, and the BEST big sister to her beloved little brother Robbie.

Hannah passed away on September 26, 2013, at the age of 14, following a year-long battle with brain cancer.  But, she never let cancer define her, and was determined to live her best life, for however long that may have been.  Two weeks after brain surgery, not only was she back on the soccer field, but she scored the winning goal in double overtime for her middle school team.

It was at that moment she showed the world that no matter what life throws at you, give it your best and NEVER EVER GIVE UP.

Hannah’s spontaneous nature, kind soul and contagious laugh are what is missed most.  Her spirit and her positive attitude in the worst of times have brought out the best in so many people.

On the night Hannah died,  I said these words…”live with no regrets, love with compassion, be kind, and never ever give up that fighting spirit”… If you live those simple words, you will honor our beautiful Hannah because that is how she lived her life…

Her greatest wish was to be remembered,  and at 14 years old,  she IS being remembered…not for how she died, but because of how she lived.

Learn more about Hannah Rose Duffy at https://www.hannahduffy.org

Registry

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The GC Registry aggregates data and tissue samples from patients around the world. Intensive study of these samples and data will help unlock the mysteries of this terrible tumor.

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Join the advocacy and become part of the community that was established to support groundbreaking research in finding a cure for Gliomatosis Cerebri. Partners are either family touched by Gliomatosis Cerebri or foundations supporting the same cause. Click below to learn how to join the community.

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