ENROLL IN THE REGISTRY
The Gliomatosis Cerebri Registry is a central repository of demographic and other data about cases of GC. Wherever possible, we will collect tissue samples from those in the registry to enrich our study and help us make progress against GC. We are open to sharing those samples with our partner institutions in the spirit of collaboration that drives us to find answers more quickly.
In addition, we sequence the genome of all Gliomatosis Cerebri patient tumors that we biopsy here at NewYork-Presbyterian/Weill Cornell Medical Center. Our patients may enroll in the Registry to provide information and samples that doctors obtain during the diagnosis and medical care of patients. There is no cost to patients, and there are no tests, scans or other medical procedures involved.
To find out more about enrolling in the Registry, visit the Who Is Eligible? page. To enroll, start by filling out the Gliomatosis Cerebri Registry form.
JOIN OUR GROUP
The GC Connection is a network of people who have been touched by Gliomatosis Cerebri. It is a closed Facebook Group where families come together to share information on ourselves and our family members, including updates, struggles, treatment options, research and fundraising initiatives.
Registry
ENROLL IN THE REGISTRY
The Gliomatosis Cerebri Registry is a key part of the Children's Brain Tumor Project at Weill Cornell Medicine Pediatric Neurosurgery. The registry will establish a central database of gliomatosis cerebri cases worldwidem.
COMMUNITY
Join the advocacy and become part of the community that was established to support groundbreaking research in finding a cure for Gliomatosis Cerebri. Partners are either family touched by Gliomatosis Cerebri or foundations supporting the same cause.