One of the pains of families who were touched by Gliomatosis Cerebri is not knowing the right people to contact for consultations.

With that in mind, we referenced below 27 physicians representing each of the different countries in Europe.

If your child has been diagnosed, or your medical team has suspected GC, do not hesitate to contact the doctors on this list.

They are all brilliant minds, and they are working to find a cure and for children to have the best quality of life possible.

European Group Coordinator SIOPe for Gliomatosis Cerebri:

Andrés Morales e-mail:

List of Hospitals and Research Centers that takes care of Gliomatosis Cerebri

Country National Coordinator HGG Center/Organization Contact
Austria Martin Benesch Medical University of Graz, Auenbruggerplatz, Austria
Belgium Sandra Jacobs Universiteit van Amsterdam, Belgium
Croatia Filip Jadrijevic-Cvrlje Children’s Hospital Zagreb, Zagreb, Croatia
Czech Republic David Sumerauer Charles University in Prague, Prague (CUNI), Czech Republic
Denmark Karsten Nysom Copenhagen University Hospital, Denmark
Finland Virve Pentikäinen Helsinki University Central Hospital, Helsinki (HUCH), Finland
France Jacques Grill Institut de Cancérologie Gustave Roussy, Villejuif (IGR), France
Germany Christof Kramm Universitätsmedizin Göttingen, Goettingen, Germany
Greece Antonis Kattamis National & Kapodistrian University of Athens, Greece
Hungary Peter Hauser Semmelweis University, Budapest (SOTE), Hungary
Iceland Hallress Kristin Thorarinsdottir Iceland
Ireland Jane Pears The University of Dublin College Green Dublin 2, Ireland
Italy Maura Massimino Fondazione IRCCS Istituto Nazionale dei Tumori In Milano, Italy
Lithuanian Giedre Rutkauskiene Lithuanian University of Health Sciences, Kaunas LSMU
Malta Calvagna, Victor Mater Dei Hospital, Malta
Netherlands Dannis van Vuurden VU University Medical Center, Amsterdam, The Netherlands
Norway Ingrid Torsvik Haukeland University Hospital, N-5021, Bergen, Norway
Poland Marta Perek-Polnik National Science Centre, Poland
Portugal Maria João Gil-da-Costa Hospital de São João, Porto (HSJ), North Region Portugal
Russia Olga Zheludkova Scientific Clinical Centre Pediatric Hematology, Oncology, Immunology at HR&rec, Moscow, Russian Federation
Slovakia Ladislav Deak Children Faculty Hospital, Slovakia Republic
Slovenia Lidija Kitanovski Ljubljana University Medical Centre, Slovenia
Spain Andres Morales Barcelona Children’s Hospital, Spain
Sweden Stefan Holm Karolinska Institutet, Sweden
Switzerland Nicolas Gerber University Children’s Hospital, Zurich, Switzerland
Turkey Rejin Kebudi Istanbul University, Istanbul, Turkey
UK Darren Hargrave The Brain Tumour Charity and Cancer Research UK



The European Society for Paediatric Oncology Task Force

In the last few years, some scientific publications have highlighted the fact that Gliomatosis cerebri (GC) shares some relevant pathways other invasive high-grade gliomas have. This has been reproduced in small case series of adult and pediatric GC. Additionally, the 2016 WHO classification has deleted GC as a distinct entity, rather being considered as a growth pattern identified rarely in higher grade glial tumors.
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Institute of Cancer Research

The Institute of Cancer Research (ICR), London, is one of the world’s most influential cancer research institutes. They are passionate about their mission to make the discoveries that defeat cancer. Through their unique partnership with The Royal Marsden and ‘bench-to-bedside’ approach, the ICR is able to create and deliver results in a way that other institutions cannot. Together, the two organizations are rated in the top four cancer centers globally.
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