HOSPITALS & RESEARCH CENTERS
One of the pains of families who were touched by Gliomatosis Cerebri is not knowing the right people to contact for consultations.
With that in mind, we referenced below 27 physicians representing each of the different countries in Europe.
If your child has been diagnosed, or your medical team has suspected GC, do not hesitate to contact the doctors on this list.
They are all brilliant minds, and they are working to find a cure and for children to have the best quality of life possible.
European Group Coordinator SIOPe for Gliomatosis Cerebri:
Andrés Morales e-mail: amorales@hsjdbcn.org
List of Hospitals and Research Centers that takes care of Gliomatosis Cerebri
| Country | National Coordinator HGG | Center/Organization | Contact |
| Austria | Martin Benesch | Medical University of Graz, Auenbruggerplatz, Austria | Martin.Benesch@klinikum-graz.at |
| Belgium | Sandra Jacobs | Universiteit van Amsterdam, Belgium | sandra2.jacobs@uzleuven.be |
| Croatia | Filip Jadrijevic-Cvrlje | Children’s Hospital Zagreb, Zagreb, Croatia | filipjc@yahoo.com |
| Czech Republic | David Sumerauer | Charles University in Prague, Prague (CUNI), Czech Republic | David.Sumerauer@fnmotol.cz |
| Denmark | Karsten Nysom | Copenhagen University Hospital, Denmark | Karsten.Nysom@regionh.dk |
| Finland | Virve Pentikäinen | Helsinki University Central Hospital, Helsinki (HUCH), Finland | virve.pentikainen@hus.fi |
| France | Jacques Grill | Institut de Cancérologie Gustave Roussy, Villejuif (IGR), France | grill@igr.fr |
| Germany | Christof Kramm | Universitätsmedizin Göttingen, Goettingen, Germany | christof.kramm@med.uni-goettingen.de |
| Greece | Antonis Kattamis | National & Kapodistrian University of Athens, Greece | ankatt@med.uoa.gr |
| Hungary | Peter Hauser | Semmelweis University, Budapest (SOTE), Hungary | hauserpeti@yahoo.com |
| Iceland | Hallress Kristin Thorarinsdottir | Iceland | halldkth@landspitali.is |
| Ireland | Jane Pears | The University of Dublin College Green Dublin 2, Ireland | Jane.Pears@olchc.ie |
| Italy | Maura Massimino | Fondazione IRCCS Istituto Nazionale dei Tumori In Milano, Italy | maura.massimino@istitutotumori.mi.it |
| Lithuanian | Giedre Rutkauskiene | Lithuanian University of Health Sciences, Kaunas LSMU | giedre.rutkauskiene@gmail.com |
| Malta | Calvagna, Victor | Mater Dei Hospital, Malta | victor.calvagna@gov.mt |
| Netherlands | Dannis van Vuurden | VU University Medical Center, Amsterdam, The Netherlands | dg.vanvuurden@vumc.nl |
| Norway | Ingrid Torsvik | Haukeland University Hospital, N-5021, Bergen, Norway | ingrid.kristin.torsvik@helse-bergen.no |
| Poland | Marta Perek-Polnik | National Science Centre, Poland | m.perek-polnik@czd.pl |
| Portugal | Maria João Gil-da-Costa | Hospital de São João, Porto (HSJ), North Region Portugal | mjgildacosta@gmail.com |
| Russia | Olga Zheludkova | Scientific Clinical Centre Pediatric Hematology, Oncology, Immunology at HR&rec, Moscow, Russian Federation | clelud@mail.ru |
| Slovakia | Ladislav Deak | Children Faculty Hospital, Slovakia Republic | deak@dfnkosice.sk |
| Slovenia | Lidija Kitanovski | Ljubljana University Medical Centre, Slovenia | lidija.kitanovski@kclj.si |
| Spain | Andres Morales | Barcelona Children’s Hospital, Spain | amorales@hsjdbcn.org |
| Sweden | Stefan Holm | Karolinska Institutet, Sweden | stefan.holm@karolinska.se |
| Switzerland | Nicolas Gerber | University Children’s Hospital, Zurich, Switzerland | nicolas.gerber@kispi.uzh.ch |
| Turkey | Rejin Kebudi | Istanbul University, Istanbul, Turkey | rejinkebudi@yahoo.com |
| UK | Darren Hargrave | The Brain Tumour Charity and Cancer Research UK | darren.hargrave@nhs.net |
RESEARCH UPDATES
RECENT ARTICLES
The European Society for Paediatric Oncology Task Force
In the last few years, some scientific publications have highlighted the fact that Gliomatosis cerebri (GC) shares some relevant pathways other invasive high-grade gliomas have. This has been reproduced in small case series of adult and pediatric GC. Additionally, the 2016 WHO classification has deleted GC as a distinct entity, rather being considered as a growth pattern identified rarely in higher grade glial tumors.
read moreInstitute of Cancer Research
The Institute of Cancer Research (ICR), London, is one of the world’s most influential cancer research institutes. They are passionate about their mission to make the discoveries that defeat cancer. Through their unique partnership with The Royal Marsden and ‘bench-to-bedside’ approach, the ICR is able to create and deliver results in a way that other institutions cannot. Together, the two organizations are rated in the top four cancer centers globally.
read more