Weill Cornell Brain and Spine Center
The Weill Cornell Pediatric Brain and Spine Center, directed by Dr. Mark M. Souweidane is a place to go to for individuals suffering from brain tumors among other sicknesses. The center takes a multidisciplinary approach for each child undergoing treatment, that is they take into account not only the disease at its current state but also the lifetime implications.
Embodied in their program for pediatric neurosurgery are;
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- a preparatory guide for parents their child’s neurosurgical procedure
- pre-surgical tour for the kid’s stay in the hospital
- parent-to-parent program
- child-life under the care of child specialist to ease the stress of hospitalization and surgical procedures
This perspective offers pediatric neurosurgery patients the best opportunity to enjoy a normal transition from child to adult.
JOIN OUR GROUP
The GC Connection is a network of people who have been touched by Gliomatosis Cerebri. It is a closed Facebook Group where families come together to share information on ourselves and our family members, including updates, struggles, treatment options, research and fundraising initiatives.
ENROLL IN THE REGISTRY
ENROLL IN THE REGISTRY
The Gliomatosis Cerebri Registry is a key part of the Children's Brain Tumor Project at Weill Cornell Medicine Pediatric Neurosurgery. The registry will establish a central database of gliomatosis cerebri cases worldwide, aggregating data on medical history, diagnostics, genomics, treatments, and outcomes.
COMMUNITY
Join the advocacy and become part of the community that was established to support groundbreaking research in finding a cure for Gliomatosis Cerebri. Partners are either family touched by Gliomatosis Cerebri or foundations supporting the same cause. Click below to learn how to join the community.