Sean Jucha: SeanStrong’s 4th Annual Kickball Tournament
Congratulations to the Seanstrong Foundation, on the success of their 4th Annual Kickball Tournament held at East Greenbush, N.Y. The event was held last October 20, 2019 and was featured at News10.com .
Seanstrong also held their 3rd “A Nite of Comedy” annual event last April 7, 2019. The event’s proceeds was meant to help others in honor of Sean by raising money for the Dana-Farber Cancer Institute and the Jimmy Fund.
Sean’s family continues to hold these events in honor of Sean who was very a very atlhetic boy until he had to battle with Gliomatosis Cerebri.
You can read more about Sean’s story here or their fundraising programs at SeanStrong
Registry
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The GC Registry aggregates data and tissue samples from patients around the world. Intensive study of these samples and data will help unlock the mysteries of this terrible tumor.
COMMUNITY
Join the advocacy and become part of the community that was established to support groundbreaking research in finding a cure for Gliomatosis Cerebri. Partners are either family touched by Gliomatosis Cerebri or foundations supporting the same cause. Click below to learn how to join the community.