Sean Jucha

Sean Jucha came into the world on June 20th thirteen years ago. The name Sean, meaning, “Gift from God” was given to him by his loving parents Heather and Robert Jucha. Sean is the first child born to Heather and Bob and was joined six years later by his little brother Ryan. He was a healthy and robust boy until the summer he turned ten. It was then that Sean’s battle with Gliomatosis Cerebri began.

To learn more about Sean’s story click here  

To honor Sean’s life his family has set up a fundraising campaign that assists families in their battle against this deadly disease. The campaign is dedicated to helping fund the Dana-Farber and the Jimmy Fund whose sole mission is to conquer childhood cancer. Funds collected are specifically directed to some of the country’s top medical researchers who are currently working to find a cure for the tumor that claimed Sean’s life.

As of the writing, Sean Jucha’s fundraising campaign has reached over $125595.60 and his family is truly thankful for the generosity and support of many people in honor of their son Sean.



The GC Registry aggregates data and tissue samples from patients around the world. Intensive study of these samples and data will help unlock the mysteries of this terrible tumor.


Join the advocacy and become part of the community that was established to support groundbreaking research in finding a cure for Gliomatosis Cerebri. Partners are either family touched by Gliomatosis Cerebri or foundations supporting the same cause. Click below to learn how to join the community.


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