PATRICK BAYLY MARSANO


Patrick was diagnosed with Astrocytoma grade III – Gliomatosis Cerebri. The struggle and painful journey started for all of us that day. The morning of the 24th of December 2013, Patrick’s left eye started blinking; he felt tired and didn’t want to play games on his iPad which he loved. We were supposed to go on our first family trip to the snow for the holidays. We assumed that he could get a fever from a virus so we took him to the pediatrician.

The appointment took longer than usual. I felt something was strange so I called my mom. The pediatrician then said we needed to see an ophthalmologist because his eye nerve looked very swollen. The ophthalmologist asked immediately for a brain MRI that was the second worst day of our lives. But we never lost our faith and hope until the last day.

Patrick fought bravely for three and a half years and was very much loved by all his family and friends. He will always be remembered as the joyful, caring and noble boy he always was. Patrick touched our lives with the purest love and is the inspiration for our Association Fe y Misericordia (Faith and Mercy).

ENROLL IN THE REGISTRY

The GC Registry aggregates data and tissue samples from patients around the world. Intensive study of these samples and data will help unlock the mysteries of this terrible tumor.

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COMMUNITY

Join the advocacy and become part of the community that was established to support groundbreaking research in finding a cure for Gliomatosis Cerebri. Partners are either family touched by Gliomatosis Cerebri or foundations supporting the same cause. Click below to learn how to join the community.

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