Izas’ Story


Izas was always a free soul. Her vision as a girl touched our heart, she made us understand that our walls were more beautiful when she drew on them. Happiness was spending every split second with her sister, happiness was feeling her touch in every hug, her lips in every kiss. Happiness was the smile that never left her face, the smile that reflected on each of us.

Islas could turn any place or person into happiness, love, without her, we feel empty. We try to survive with the memories we have, but her absence is unexplainably large…

Ixeya believes with all her heart that Izas is in her heart, and yes, she is in the heart of all of us who have had the pleasure of meeting her, spending time with her, loving her, but it will never be enough, and we will always miss Izas, our little Princess Pea.

Izas, la Princesa Guisante, was created because Izas didn’t even have the chance to fight, that is unacceptable, it´s unfair; inadmissible, for there not to have been any research or clinical trials for the Gliomatosis, how is it possible, how can we understand that specialists hadn´t even heard of this disease; this is the reason behind our foundation. We are fighting to know more, we want to find a cure, we want every child to be able to live a long life as they deserve, a life like any other child, without restrictions.

Izas didn’t have a chance, we want other children to have a chance, we want parents to be able to kiss their children every day, we want them to be able to play with their siblings and tell them secrets, argue and makeup, we want them to live a childhood as they well deserve.

This is our way of hugging Izas, our way of reaching out for her hand, fighting on her behalf, with her, for the rest.
After her death, we donated her brain tissue and once again the “Sant Joan de Déu “Hospital stood by our side as a family as well as a foundation where as a team we were able to initiate research for Gliomatosis Cerebri.
Izas and Ixeya

A foundation was then established and named after Izas. Click here to read about Izas’ la Princesa Guisante Foundation.

 

Registry

ENROLL IN THE REGISTRY

The GC Registry aggregates data and tissue samples from patients around the world. Intensive study of these samples and data will help unlock the mysteries of this terrible tumor.

COMMUNITY

Join the advocacy and become part of the community that was established to support groundbreaking research in finding a cure for Gliomatosis Cerebri. Partners are either family touched by Gliomatosis Cerebri or foundations supporting the same cause. Click below to learn how to join the community.

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