Izas’ La Princesa Guisante
The origin of this association is Izas, our daughter, who after an erroneous diagnosis and multiple obstacles of the health administration to go to a national reference hospital, once overcome, was diagnosed with a fatal disease, a brain cancer called Gliomatosis Cerebri.
As the origin of the association, it is then proper for us to name the association after her, Izas’ La Princesa Guisante.
We are with the mission to;
- Encourage and promote the research of Gliomatosis Cerebri pediátria
- Dissemination in the medical and hospital field of pediatric gliomatosis Cerebri; diagnosis, treatments, and medical needs.
- Social diffusion of this disease and its terrible consequences
- Create a network of affected families, where information about symptoms, clinical trials, palliative care … is fluid and updated, with an exchange between parents, as well as a meeting point that gives us emotional support.
- Information about tissue banks, the importance of them and their usefulness
JOIN OUR GROUP
The GC Connection is a network of people who have been touched by Gliomatosis Cerebri. It is a closed Facebook Group where families come together to share information on ourselves and our family members, including updates, struggles, treatment options, research and fundraising initiatives.
Registry
ENROLL IN THE REGISTRY
The Gliomatosis Cerebri Registry is a key part of the Children's Brain Tumor Project at Weill Cornell Medicine Pediatric Neurosurgery. The registry will establish a central database of gliomatosis cerebri cases worldwidem.
COMMUNITY
Join the advocacy and become part of the community that was established to support groundbreaking research in finding a cure for Gliomatosis Cerebri. Partners are either family touched by Gliomatosis Cerebri or foundations supporting the same cause.