Franck Un Rayon de Soleil
Created in 2010 by the family and friends of the young Franck, 14, died of a brain gliomatosis, the association is involved in favor of cancer research in children but also in supporting families affected by this disease.
The plan of action is to donate 100% of the donations collected, mainly by organizing recreational outings for children and their families (zoos, amusement parks …), contributing to the improvement of hospital conditions, but also by providing financial support to struggling families.
However, since the organization of the Gliomatosis Cerebri Conference, the foundation had also been supporting medical researches that are essential for the treatment and diagnosis of Cerebral Gliomatosis in children.
JOIN OUR GROUP
The GC Connection is a network of people who have been touched by Gliomatosis Cerebri. It is a closed Facebook Group where families come together to share information on ourselves and our family members, including updates, struggles, treatment options, research and fundraising initiatives.
Registry
ENROLL IN THE REGISTRY
The Gliomatosis Cerebri Registry is a key part of the Children's Brain Tumor Project at Weill Cornell Medicine Pediatric Neurosurgery. The registry will establish a central database of gliomatosis cerebri cases worldwidem.
COMMUNITY
Join the advocacy and become part of the community that was established to support groundbreaking research in finding a cure for Gliomatosis Cerebri. Partners are either family touched by Gliomatosis Cerebri or foundations supporting the same cause.