JOIN OUR FAMILY
CONNECT WITH FAMILIES
JOIN OUR GROUP
The GC Connection is a network of people who have been touched by Gliomatosis Cerebri. It is a closed Facebook Group where families come together to share information on ourselves and our family members, including updates, struggles, treatment options, research and fundraising initiatives.
PARTICIPATE IN THE SOLUTION
ENROLL IN THE REGISTRY
The Gliomatosis Cerebri Registry is a key part of the Children's Brain Tumor Project at Weill Cornell Medicine Pediatric Neurosurgery. The registry will establish a central database of gliomatosis cerebri cases worldwidem.
SUPPORT OUR CAUSE
COMMUNITY
Join the advocacy and become part of the community that was established to support groundbreaking research in finding a cure for Gliomatosis Cerebri. Partners are either family touched by Gliomatosis Cerebri or foundations supporting the same cause.
GC GLOBAL MAP
Discover the Network of Hope and Action
This interactive map brings together family foundations and healthcare organizations from across the globe, united in the search for a cure for gliomatosis cerebri. Each marker represents a story of resilience, compassion, and commitment—whether it’s a family building legacy through advocacy or a healthcare institution advancing research and care.
From the United States to Europe, South America, Asia, and beyond, the map reveals a growing network of hope and action.
AYJ Fund / Boston, MA, USA
Elizabeth’s Hope / New York, NY, USA
Elizabeth’s Hope
New York City, NY
Email: info@elizabethshope.com
The Joshua Bembo Project / Maryland, USA
The Joshua Bembo Project
Waldorf, MD
Email: thejoshuabemboproject@gmail.com
Rudy Menon Foundation / London, UK
Rudy Menon Foundation
London, UK
email: rememberingrudymenon@gmail.com
Izas La PrincesaGuisante / Barcelona, Spain
Franck Un Rayon de Soleil / France
Franck Un Rayon de Soleil
8 Rue des Orfèvres
67290 Wingen-sur-Moder, France
email: a.andlauer@alphavalue.ue
Rudy Menon Foundation / Kuwait
Rudy Menon Foundation
India
email: rememberingrudymenon@gmail.com
The Joshua Bembo Project / Philippines
The Joshua Bembo Project
Philippines
Email: thejoshuabemboproject@gmail.com
Mathys Un Rayon De Soleil / France
Mathys Un Rayon De Soleil
113 La Pécotaie
44390 Saffré, France
Anne Un Rayon De Soleil / France
Rudy Menon Foundation / India
Fe Y Misericordia / Peru
Franck Un Rayon de Soleil / France
Weill Cornell Brain & Spine Center / New York City, NY
Dr. Jeffrey Greenfield
Weill Cornell Brain & Spine Center
1300 York Avenue, New York, NY 10065
Phone: (212) 746-2363
Dana–Farber Cancer Institute / Boston, MA
Institute of Cancer Research / London, United Kingdom
Hospital Sant Joan de Déu Barcelona / Barcelona, Spain
National Children’s Medical Center / Washington DC
Dr. Roger Packer
National Childrens Medical Center
111 Michigan Avenue NW, Washington, D.C., 20010
Phone: 1-888-884-BEAR (2327)